KnE Life Sciences
ISSN: 2413-0877
The latest conference proceedings on life sciences, medicine and pharmacology.
The Effect of Family Support, Transfusion Compliance and Self-Efficacy on the Quality of Life of Children With Thalassemia
Published date: Feb 07 2022
Journal Title: KnE Life Sciences
Issue title: 5th International Conference in Nursing (IVCN)
Pages: 102–112
Authors:
Abstract:
Thalassemia is a chronic disease that can affect quality of life. The purpose of this study was to determine the effect of family support, transfusion compliance and self-efficacy on the quality of life of children with thalassemia. This research was correlational with a cross-sectional approach. The sample consisted of 45 people. Data were collected using questionnaires, and statistical analysis consisted of descriptive data analysis of respondents’ characteristics, univariate analysis of each variable, simple linear regression analysis and multiple linear regression analysis. The results showed that family support affected quality of life (b = 0.628, p = 0.009), transfusion compliance affected quality of life (b = 7.294, p = 0.048), and self-efficacy affected quality of life (b = 0.374, p = 0.038). Also, family support, transfusion compliance and self-efficacy simultaneously affected the quality of life of children with thalassemia at Bhayangkara Setukpa Hospital, Sukabumi City (p < 0.001).
Keywords: family support, transfusion compliance, self-efficacy, thalassemia, quality of life
References:
[1] Afandi AT, Kurniyawan EH. Efektivitas self-efficacy terhadap kualitas hidup klien dengan diagnosa penyakit kronik. In Prosiding Seminar Nasional dan Workshop Publikasi Ilmiah; 2018;February 05 8p.
[2] Marnis D, Indriati G, Nauli FA. Hubungan tingkat pengetahuan dengan kualitas hidup anak thalasemia. Jurnal Keperawatan Sriwijaya. 2018;5(2):31–42.
[3] Kemenkes. Profil kesehatan Indonesia. Jakarta: Kementerian Kesehatan Indonesia; 2018.
[4] Rujito L, Lestari DWD, Aziz A, Faiza D. Sosialisasi thalassemia kepada guru biologi di banyumas: Upaya pencegahan terintegrasi melalui kurikulum sekolah. Jurnal Pengabdian Pada Masyarakat. 2018;3(1):1–6. https://doi.org/10.30653/002.201831.35
[5] Renylda R. kecemasan orang tua pada anak dengan thalasemia di poli anak rumah sakit umum daerah H. Abdul manap kota jambi tahun 2015. Jurnal Ilmiah Universitas Batanghari Jambi. 2018;18(1):110. https://doi.org/10.33087/jiubj.v18i1.438
[6] Hutahaen F, Hendrianingtyas M. Hubungan jumlah transfusi dengan kadar tsh pada thalassemia. Jurnal Kedokteran Diponegoro. 2017;6(2):558–566.
[7] Ray RL, Rahmawati F, Andhini D. Hubungan pengetahuan dan sikap orang tua dengan kualitas hidup anak penderita talasemia. Seminar Nasional Keperawatan. 2018;4(1):79–85.
[8] Anisawati LD. Dukungan orang tua dengan kualitas hidup anak penderita thalasemia. (Doctoral dissertation, STIKES Insan Cendekia Medika Jombang. 2017.
[9] Mustofa FL, Triswanti N, Rukmono P, Satriadi MF. Hubungan Kepatuhan transfusi darah terhadap pertumbuhan anak thalassemia di rumah singgah thalassemia bandar lampung. Jurnal Medika Malahayati. 2020;4(2):130–136.
[10] Shoufiah R. Hubungan faktor resiko dan karakteristik penderita dengan kejadian penyakit jantung koroner. Mahakam Nursing Journal. 2016;1(1):17–26.
[11] Hardin F, Dhila SN. Hubungan dukungan keluarga dengan kualitas hidup pasien dm di puskesmas lubuk begalung padang tahun 2019. Jurnal Kesehatan Lentera ‘Aisyiyah. 2021;4(1):317–326.
[12] Rahayuningrum DC, Nofia V, Dewi RIS, Zulfianis M. Hubungan dukungan keluarga dengan kualitas hidup pasien skizofrenia. Jurnal Kesehatan Medika Saintika. 2021;11(2):282–289.
[13] Wang L, Yang L, Di X, Dai X. Family support, multidimensional health, and living satisfaction among the elderly: A case from Shaanxi province, China. International Journal of Environmental Research and Public Health. 2020;17(22):1–18. https://doi.org/10.3390/ijerph17228434
[14] Ae Ran P, Kyeong-Sook J. Influence of subjective health status, social activity and family support on subjective quality of life of elderly in a community. Journal of the Korean Contents Association. 2017;17(3):212–221.
[15] Irawan E, Hayati S, Purwaningsih D. Hubungan dukungan keluarga dengan kualitas hidup penderita kanker payudara. Jurnal Keperawatan BSI. 2017;Vol 5 No 2;121-129.
[16] Silva MEA, Moura FMA, Reichert APS, Collet N. Network and social support in children with chronic diseases: Understanding the child’s perception. Texto & Contexto – Enfermagem. 2017;26(1):1–10. https://doi.org/10.1590/0104-07072017006980015
[17] Rahman HF, Yulia Y, Sukarmini L. Efikasi diri, kepatuhan, dan kualitas hidup pasien diabetes melitus tipe 2 (Self-efficacy, adherence, and quality of life of patients with type 2 diabetes). E-Jurnal Pustaka Kesehatan. 2017;5:108–113.
[18] Chalik R, Ahmad T, Hidayati H. Kepatuhan pengobatan dan kualitas hidup pada pasien hipertensi rawat jalan di rumah sakit X Kota Makassar. Media Farmasi. 2021;17(1):85. https://doi.org/10.32382/mf.v17i1.1983
[19] Majeed A, Rehman M, Hussain I, et al. The impact of treatment adherence on quality of life among type 2 diabetes mellitus patients – Findings from a cross-sectional study. Patient Preference and Adherence. 2021;15:475–481. https://doi.org/10.2147/PPA.S295012
[20] Hijriani H, Septiani NU. Hubungan kepatuhan tranfusi darah dan konsumsi kelasi besi terhadap pertumbuhan anak dengan thalasemia mayor correlation of compliance of blood transfusion and consumption of iron chelation on child growth with thalassemia major. Jurnal Kampus STIKes YPIB Majalengka. 2020;8(2):105–117.
[21] Ghorbanpoor M, Mirzaie M, Mirhaghjou SN, Roshan ZA. The relationship between psychosocial status and adherence to treatment regimen in adolescents with thalassemia. Journal of Holistic Nursing and Midwifery. 2020;30(2):78–85. https://doi.org/10.32598/jhnm.30.2.78
[22] Wati FR, Afiani N, Qodir A. Pasien hipertensi dengan penyerta diabetes mellitus. Media Husada Journal of Nursing Sciences. 2021;2:28–34.
[23] Welly W, Rahmi H. Self-efficacy dengan kualitas hidup pasien gagal ginjal kronik yang menjalani hemodialisa. Jurnal Keperawatan Abdurrab. 2021;5(1):38–44. https://doi.org/10.36341/jka.v5i1.1791
[24] Pongantung H, Anita F, Palango C, Manuel C. Hubungan self-efficacy dengan quality of life pada pasien sesudah stroke. Journal of Islamic Nursing. 2020;5(1):21. https://doi.org/10.24252/join.v5i1.13894
[25] Tabernero C, Caprara GV, Gutiérrez-Domingo T, et al. Positivity and self-efficacy beliefs explaining health-related quality of life in cardiovascular patients. Psicothema. 2021;33(3):433–441. https://doi.org/10.7334/psicothema2020.476
[26] Brunes A, Hansen MB, Heir T. General self-efficacy in individuals with visual impairment compared with the general population. PLoS ONE. 2021;16( July):1–12. https://doi.org/10.1371/journal.pone.0254043
[27] Taheri P, Nooryan K, Karimi Z, Zoladl M. Effect of individual psychotherapy with a focus on self-efficacy on quality of life in patients with thalassemia major: A clinical trial. Journal of Clinical Care and Skills. 2020;1(2):49–54. https://doi.org/10.52547/jccs.1.2.49
[28] Susanti L, Murtaqib M, Kushariyadi K. Hubungan antara efikasi diri dengan kualitas hidup pasien hipertensi di wilayah kerja puskesmas silo jember. Pustaka Kesehatan. 2020;8(1):17. https://doi.org/10.19184/pk.v8i1.10891 DOI